|
Donate today to the 15th Annual Positive Spin
for ALS!
View Pictures From The Event Here
The 15th Annual Positive Spin for ALS took place on
Sunday June 14th, 2009 at The Longfellow Club in Wayland,
Massachusetts. This was a wonderful day full of scenic bike routes,
music, food, entertainment, children’s activities and more! Riders
can chose between a children’s ride, 10 mile, 25 mile, 50 mile, and
75 mile route. The money raised from the Spin will be used to
benefit over 250 patients in Massachusetts and ongoing national
research efforts. Every dollar counts and makes a huge difference in
the lives of patients and their families. Even though the event has
now happened, you can still support a rider or make a general
donation!
How you are helping!
Research- A percentage of funds that are raised are
distributed to research institutions worldwide. We offer an
up-to-date listing of current research trials that are being
conducted locally and nationally.
Children’s Fund- Provide funding to ALS families statewide,
helping to minimize the cost of children’s activities. Some of these
activities included summer camp, day care, after school community
programs, and mental health counseling.
Patient Support-. We are able to provide patients and their
families with support groups, insurance issues and offer full time
support to patients and all of their loved ones.
Family & Respite Care- Our respite care program is provided
to relieve family caregivers. The respite program may provide some
funding for home health care, a short stay in a nursing home or
rehabilitation hospital or an adult health program.
Equipment Loan Program- Our equipment loan program offers
durable medical equipment and deliver at no cost to patients.
Equipment includes such items as wheelchairs, hoyer lifts and
walkers. We are staffed with a part time equipment loan coordinator
who delivers the equipment and makes sure patients and their
families have full instruction on equipment use.
Advocacy- Our Chapter works with both state and national
officials to sponsor legislation to benefit ALS families. Our
Advocacy Committee, which is comprised of volunteer patients,
caregivers, nurses, patient advocates, and patient services operates
to educate legislators at state and federal levels of the need to
improve healthcare for ALS patients and to educate the public on
services available from The ALS Association.
66.1966666666667
|
 |
Our goal: $150,000 |
$99,295 raised so far,
$50,705 to go!
|
|
|
|