The 14th Annual Positive Spin for ALS will be taking place on Sunday June 22, 2008 at The Longfellow Club in Wayland, Massachusetts. This is a wonderful day full of scenic bike routes, music, food, entertainment, children’s activities and more! Riders can choose between a children’s ride, 10 mile, 25 mile, 50 mile, and 75 mile route. The money raised from the Spin will be used to benefit over 200 patients in Massachusetts and research worldwide. Every dollar counts and makes a huge difference in the lives of patients and their families. Sign up today, be a part of an amazing day, and help us Strike Out ALS!

How your money is benefiting ALS:

Research- A percentage of funds that are raised are distributed to research institutions worldwide.

Children’s Fund- Provide funding to ALS families statewide, helping to minimize the cost of children’s activities. Some of these activities included summer camp, holiday presents, and school clothing.

Patient Support-. We are able to provide patients and their families with support groups, insurance issues and offer full time support to patients and all of their loved ones.

Family & Respite Care- Our respite care program is provided to relieve family caregivers. This is done by funding home health care such as aids and nurses, and providing patients with nursing homes and rehabilitation hospitals.

Equipment Loan Program- Our equipment loan program is cost free to patients. Wheelchairs,  Hoyer lifts and walkers are just some of the equipment that we lend out. We are staffed with a part time equipment loan coordinator who drives the equipment right to the patient’s home, takes care of all equipment, and makes sure patients and their families have full instruction on equipment use.

Advocacy- Our Chapter works with both state and national officials to sponsor legislation to benefit ALS families. This past year our Chapter has worked on requiring medical doctors to report cases of ALS in Massachusetts. With this tracking system in place, scientists will be able to gather vital information about the disease and its cause, possibly leading to a cure and offering more effective treatment for patients. Our Advocacy Committee, which is comprised of volunteer patients, caregivers, nurses, patient advocates, and patient services operates to educate legislators at state and federal levels of the need to improve healthcare for ALS patients and to educate the public on services available from The ALS Association.

70.9251428571429 Our goal: $175,000 $124,119 raised so far,   $50,881 to go!